Yuurei
Noncompliant
- Joined
- Sep 29, 2016
- Messages
- 4,496
- MBTI Type
- ENTJ
- Enneagram
- 8w7
what drugs do you need to take (if you don't mind me asking)? Some can be made for "cheap" if they're small enough, but most aren't.
This: ( couldn't find a shorter explanation)
Cystagon (Cysteamine Bitartrate): Side Effects, Interactions, Warning, Dosage & Uses
Last I knew they were $180k a year, down from $250
These one: are the same thing only intero-coated capsules.
Amazon.com: Empty Enteric Coated Capsules, 1000 pcs, Size 1, Red and White, Joined: Health & Personal Care
$250k a year.
The eye drops are the same; Cystamine mixed into saline
$6k a mo and only with a visit to the NIH out of pocket for study once a year.
The guy is a damned genius ( crazy like a fox). Almost every time I'm prescribed some expensive drug be it related to cystanosis or something more common he says. " don't waste your money on that shit." and either buys materials to compound what I need or researches and finds simple, cheaper solutions like when I had acute asthma he just suggested Magnesium which worked immediately.
Obviously this doesn't apply to everything ( I know that my Tacrolymus is expensive because it is a rare mold found only in Japan) but more than enough that there is no excuse for the prices paid or hoops jumped.