Dyslexxie
Dope& diamonds.
- Joined
- Sep 2, 2015
- Messages
- 1,250
I've been suffering from a mystery digestive issue for many many years, probably going on well over 15 years now. From the time I was really young I've had issues with food - lack of appetite, nausea, bad reactions to a lot of foods (even though I have no allergies), which eventually evolved into vomiting and severe pains that would result in overnight stays in the hospital, all of which would result in very strange diagnosis: appendicitis, kidney infections, uterine infections, etc. Basically, I'd get sent home after being given a shot of morphine with some antibiotics and told to wait. Over the last few years the episodes have increased to the point where over a period of three months I couldn't hold food or drinks down, and even water would make me throw up.
I sort of know what triggers my episodes of nausea and vomiting, although sometimes it just happens for no reason. It's gotten to the point where I'm sick of people telling me to 'avoid this, try that' because I've tried it all, and it hasn't exactly helped my situation. What's good for me one time may make me sick the next. I'm also kind of sick of people making jokes about anorexia, or how lucky I am that I can stay skinny so 'easily' thanks to my stomach issues. Because vomiting to stay skinny is so fun, right?
I love food (when I can eat), but it's so inconsistent that I lack an appetite and I really struggle with maintaining a healthy body weight. My body fat is at about 12% now, I'm 100 lbs (and 5'5), and my energy levels suck.
One specialist thought it might be Crohn's disease (Gastroduodenal Crohn's disease, the puking kind). It's still unconfirmed and I still need to see another specialist and do additional testing, but while I wait, I'd be kind of curious to hear your guys' experiences with inflammatory bowel diseases (not necessarily Crohn's) and how y'all handle them, what you take to manage them, and what kind of diets you guys may follow.
I sort of know what triggers my episodes of nausea and vomiting, although sometimes it just happens for no reason. It's gotten to the point where I'm sick of people telling me to 'avoid this, try that' because I've tried it all, and it hasn't exactly helped my situation. What's good for me one time may make me sick the next. I'm also kind of sick of people making jokes about anorexia, or how lucky I am that I can stay skinny so 'easily' thanks to my stomach issues. Because vomiting to stay skinny is so fun, right?
I love food (when I can eat), but it's so inconsistent that I lack an appetite and I really struggle with maintaining a healthy body weight. My body fat is at about 12% now, I'm 100 lbs (and 5'5), and my energy levels suck.
One specialist thought it might be Crohn's disease (Gastroduodenal Crohn's disease, the puking kind). It's still unconfirmed and I still need to see another specialist and do additional testing, but while I wait, I'd be kind of curious to hear your guys' experiences with inflammatory bowel diseases (not necessarily Crohn's) and how y'all handle them, what you take to manage them, and what kind of diets you guys may follow.