ygolo
My termites win
- Joined
- Aug 6, 2007
- Messages
- 5,998
I'm curious how people do it.
I've struggled with illness most of my life and both sides of my family have bad and not entirely overlapping sets of illnesses.
Until a little over a year ago, I managed to do meaningful work for good pay.
But the severity of problems ramped up significantly last year. Luckily I got some support (unexpectedly) from academia. It wasn't enough to keep me out of debt with all the bills, but it was something.
What strategies and resources do people use?
How does one continue a meaningful career that supports ones family once illness hampers their productivity (say by a factor of 15--I've measured)?
I've posted before this link in other threads:
There's also this:
I've searched for grants for disabled people (not a veteran myself, but it's good there's some funding for them). I've searched for funding both for research and for entrepreneurship for disabled individuals, but I find mostly is funding for work about disabled people not for them. Quite frankly, this is annoying to the point of almost being infuriating. It's like the only role the us government sees for disabled people is the role of victim.
I personally just need accommodations to work from home(because neither public transit nor housing is getting fixed any time soon) with flexible hours and deadlines (I particularly need to lie down a lot after the strokes). Other s would need other accommodations, but I believe these would cover a lot of people.
It would also be ideal for me to work in critically meaningful projects (and I have a lot of ideas) that aren't time critical.
I wanted to see if anyone has had better luck finding resources.
Edit, found more resources. Might be useful to some:
I've struggled with illness most of my life and both sides of my family have bad and not entirely overlapping sets of illnesses.
Until a little over a year ago, I managed to do meaningful work for good pay.
But the severity of problems ramped up significantly last year. Luckily I got some support (unexpectedly) from academia. It wasn't enough to keep me out of debt with all the bills, but it was something.
What strategies and resources do people use?
How does one continue a meaningful career that supports ones family once illness hampers their productivity (say by a factor of 15--I've measured)?
I've posted before this link in other threads:
Chronically Capable | Flexible Jobs for the Chronically Ill
Chronically Capable is a platform that connects the 133+ million Americans who suffer from chronic illness with employers who offer remote work, great benefits, and flexible schedules.
www.wearecapable.org
There's also this:
Home - Chronically Academic
Network of Academics with Disabilities and Chronic Conditions We are Chronically Academic, a network of academics with disabilities and chronic
chronicallyacademic.org
I've searched for grants for disabled people (not a veteran myself, but it's good there's some funding for them). I've searched for funding both for research and for entrepreneurship for disabled individuals, but I find mostly is funding for work about disabled people not for them. Quite frankly, this is annoying to the point of almost being infuriating. It's like the only role the us government sees for disabled people is the role of victim.
I personally just need accommodations to work from home(because neither public transit nor housing is getting fixed any time soon) with flexible hours and deadlines (I particularly need to lie down a lot after the strokes). Other s would need other accommodations, but I believe these would cover a lot of people.
It would also be ideal for me to work in critically meaningful projects (and I have a lot of ideas) that aren't time critical.
I wanted to see if anyone has had better luck finding resources.
Edit, found more resources. Might be useful to some:
ABILITY Magazine
ABILITY Magazine is an award winning publication, providing new insights into our individual levels of ability.
abilitymagazine.com
abilityJOBS
The leading employment site for job seekers with disabilities. Employers now hiring local, nationwide and international.
abilityjobs.com
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