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Thread: Probiotics

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    Iron Maiden fidelia's Avatar
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    Default Probiotics

    I expect with all the expertise on this site someone must know something about probiotics. My guts were a mess before I discovered I had celiacs. I went off gluten and felt better right away. However, for the last couple of weeks I'm back to some of the same malabsorbtion symptoms (diarrhea, gas, rumbly stomach, heartburn, tired etc) and I'm thinking maybe one place to start is with taking some sort of probiotic. I'm gearing up for 60 days without sugar when September hits to see if that also affects energy/acidity and weight.

    Anyway, there seems to be a million kinds of probiotics and I'm not sure how to sort through them all and decide what is worth taking and what is just a way to spend a lot of money in a short time.

    Thanks for your help!

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    unscannable Tigerlily's Avatar
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    Quote Originally Posted by fidelia View Post
    I expect with all the expertise on this site someone must know something about probiotics. My guts were a mess before I discovered I had celiacs. I went off gluten and felt better right away. However, for the last couple of weeks I'm back to some of the same malabsorbtion symptoms (diarrhea, gas, rumbly stomach, heartburn, tired etc) and I'm thinking maybe one place to start is with taking some sort of probiotic. I'm gearing up for 60 days without sugar when September hits to see if that also affects energy/acidity and weight.

    Anyway, there seems to be a million kinds of probiotics and I'm not sure how to sort through them all and decide what is worth taking and what is just a way to spend a lot of money in a short time.

    Thanks for your help!
    I have UC, and when I can remember to take Align (probiotic), it works. My stomach is always giving me a hard time, so I should probably stop eating gluten. I am curious, what does your daily diet consist of and how long did it take you to notice a difference in how you felt after you stopped eating food with gluten in it?

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    Iron Maiden fidelia's Avatar
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    The difference was almost immediate. I had been having increasingly diverse symptoms for several years: perpetually cold feet, hands and nose, thinning teeth, skin problems with perpetual zits, eczema, scaly elbows, dry skin, anemia, extreme fatigue, poor immune, sudden weight gain, edema (so much so that by the end shoes were very uncomfortable and my ankles hung over them), headaches, dry hair, reflux, choking/hoarse voice from the reflux, high acidity levels, and then at the end constipation/diarrhea. I had to be right by a bathroom within 10 minutes of eating.

    It hasn't been that hard to make the switch at home - I just avoid anything containing wheat, rye or barley. Instead of pasta, I have rice noodles, rice or quinoa. There is gluten free bread called Udi's that isn't too bad, although it's expensive and there is an increasingly large selection of gluten free products out there, including a flour substitute that is quite good called celimix (usually you have to buy a whole collection of different flours and mess around with them to get something of a palatable taste and consistency but this stuff is good for crepes and muffins and cupcakes/cakes etc). Gravy can be thickened with that or cornstarch.

    The tricky thing is reading labels for stuff where you might not expect it: broth (depends on the brand), ice cream (depends on the brand), potato chips (depends on the brand and flavour), soya sauce, cocoa, salad dressing, spices, certain brands of chocolate and so on.

    Going out is more of a pain because you have to ask very detailed questions and also avoid eating anything fried - even if it doesn't contain gluten, there's no guarantee that other breaded things haven't been cooked in the same oil or on the same grill. There's also always the risk of cross contamination. Something as small as a breadcrumb can inflame and irritate the small intestine and do damage if you have a problem, so you have to be kind of vigilant.

    New York Fries is okay (even their poutine) and so are McDonald's fries (dedicated fryer), DQ ice cream and most of their toppings are alright, Tim Horton's chilli is usually fine as are a few of their soups. Most restaurants and food companies have websites you can check. With potato chips it depends on the brand.

    If you are at a potluck or someone's house, I've found it works best just to bring my own food. There's just very little that doesn't contain gluten in some form and I also don't like being "that person" who has food issues all the time. That way, I also know that no one has used a spoon from some other gluteny dish to dip into whatever I am going to serve myself.

    I've found that I can much more easily pass up a lot of food without even a twinge. There was a lot that normally I might have just because it was offered, but that I wasn't really dying to have. I've lost 25 pounds and many of the other symptoms went away, so to me, the benefits by far outweigh the hardship (I also would like to live!). If you suspect you have a problem, get a blood test for antibodies before you go off gluten and if it comes back positive and you want absolute confirmation of how severe the issue is (gluten intolerant vs celiac), get a biopsy done right away. Sometimes the blood test gives a false negative, so even if you test negative, try going off for a couple weeks and see how you feel. Many doctors are really under-educated about this, so they are not likely to happen across the diagnosis themselves. I went to about 5 or 6 doctors and was told it was premature aging, that I was healthier than I thought I was, that all the symptoms were separate conditions, or that they really didn't know. It was through a friend whose husband nearly died of celiac's and whose children both have it that I happened across that possibility and went and got tested.

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    unscannable Tigerlily's Avatar
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    Great information, thanks! I asked my DR. to test me for Celiac's, but he wanted me to take the meds he prescribed and that was the end of that conversation. I don't like taking meds if I don't need to, so I am probably going to try cutting out all gluten and see how I feel. Right now, I am not doing too bad, but I always feel crappy, and I think it's related to what I'm eating. I'll probably make a trip to Earthfare tomorrow and stock up, and I'll report back in a week as to how I'm feeling.

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    ✿ڿڰۣஇღ♥ wut ♥ღஇڿڰۣ✿ digesthisickness's Avatar
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    Celiac here too.

    I've recently become very interested in probiotics as well. The first one I'm going to try is this one found at celiac.com.
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    Iron Maiden fidelia's Avatar
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    Let me know how it works for you! How long have you known you were celiac?

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    ✿ڿڰۣஇღ♥ wut ♥ღஇڿڰۣ✿ digesthisickness's Avatar
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    Quote Originally Posted by fidelia View Post
    Let me know how it works for you! How long have you known you were celiac?
    Since about four years ago. Everything changed once I went gluten-free. My mental state, my body, everything. It was like waking up from a years-long bad dream, rubbing my eyes, and letting out a huge sigh of relief.
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    Iron Maiden fidelia's Avatar
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    How long did it take for you to get back to normal? I've been off since last October and felt better quite quickly, but am wondering how much more mprovement I can hope for as time goes on. I don't really know how long I had it before it was diagnosed. Probably a few years anyhow.

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    ✿ڿڰۣஇღ♥ wut ♥ღஇڿڰۣ✿ digesthisickness's Avatar
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    Quote Originally Posted by fidelia View Post
    How long did it take for you to get back to normal? I've been off since last October and felt better quite quickly, but am wondering how much more mprovement I can hope for as time goes on. I don't really know how long I had it before it was diagnosed. Probably a few years anyhow.
    Well, keep in mind that I suffered with it for years before finding out, only finally realizing it once I'd been rushed to the hospital for emergency surgery because my stomach finally opened up and leaked acid into the rest of my body, so my damage was extensive.

    I was even waking up with broken ribs. Once, three were broken, just from sleeping! It was very bad.

    BUT, once I went gluten free, and I mean completely as even a molecule can set you back (which is why cross-contamination is such a danger), then I felt like my old self again within just six months. Within three months, I knew I was going to finally be okay. After one month, I knew I was finally diagnosed correctly because all of the other things that were wrong with me were getting better on their own with no further help of meds, etc. All those things that doctors were 'treating' separately without treating or even looking for the root cause.
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    Certified Sausage Smoker Elfboy's Avatar
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    Quote Originally Posted by fidelia View Post
    I expect with all the expertise on this site someone must know something about probiotics. My guts were a mess before I discovered I had celiacs. I went off gluten and felt better right away. However, for the last couple of weeks I'm back to some of the same malabsorbtion symptoms (diarrhea, gas, rumbly stomach, heartburn, tired etc) and I'm thinking maybe one place to start is with taking some sort of probiotic. I'm gearing up for 60 days without sugar when September hits to see if that also affects energy/acidity and weight.
    Anyway, there seems to be a million kinds of probiotics and I'm not sure how to sort through them all and decide what is worth taking and what is just a way to spend a lot of money in a short time.
    Thanks for your help!
    -sauerkraut (this is a really easy one)
    - kefir (kefir is a type of fermented dairy product that is gluten free and 99% lactose free. if you by the kefir grains used to ferment the milk, you can make it yourself too. this is often cheaper as you can reuse the kefir grains. apart from these health benefits, it's also loaded with vitamin D and calcium and it's absolutely delicious. I would probably drink it every day if I had the money)
    - yogurt

    a few other suggestions
    - you might also want to try a colon cleanse of some kind (though I would consult an herbal specialist about this, or at least make sure you do thorough research. one thing I can tell you though is that if you do decide to do a cleanse it's important to start with a colon cleanse or else your intestines can get even more clogged)
    - if you drink coffee, you might want to switch green tea. green tea is far less acidic than coffee and will help with the heart burn symptoms (some people say green tea is alkaline and other people say it's mildly acidic, but at either way, it's much less acidic than coffee)
    - what do you mean when you say you'll be cutting out sugar? will you still be eating any sugar rich fruits or other food items that naturally contain sugar?
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