User Tag List

Results 1 to 8 of 8

  1. #1
    4x9 cascadeco's Avatar
    Join Date
    Oct 2007
    Enneagram
    4 so/sp
    Posts
    6,931

    Default Kidney failure, dialysis, and transplants....

    Anyone have a family member who has gone through this ordeal?

    ----------------------------------

    My father is 62 and I just learned that within a year he will probably need to go on dialysis.

    (Sidenote: Men, **Get a physical at least every 1-2 yrs once you turn 45-50. My Dad went 5 yrs without going to the doctor, and then went in all of a sudden because he was frustrated with blurry vision, and it turns out his blood pressure had been off-the-charts (death level, they were shocked he wasn't dead) for quite a while and as a result his kidneys were destroyed.)

    He's been on quite a few meds, and a regimented diet, for about 4-5 years now, but it still came as a shock last week to me when I learned that after his last doctor's visit, he was informed about need for dialysis by next year, and need to go on the transplant list.

    I will be going to an all-day thing next week with my mother and father to learn about all of this, the options, etc etc, but right now I guess my brain is just adjusting to the fact that my dad might be dead within the next 5-10 years. It's really weird to be faced with that reality.

    I'm also getting the initial fears regarding transplants -- already getting an internal sense of obligation from myself, as well as my mothers' unspoken hints, that I 'should' be willing to donate a kidney. But it's not something I really want to do, to be honest, or think I should have to do -- it's just the beginnings of guilt thinking I 'should' do it if I love him. So, uh....

    Guess I don't know what to think at this point.

    -----------

    Anyone have any firsthand experience with all of this?
    "...On and on and on and on he strode, far out over the sands, singing wildly to the sea, crying to greet the advent of the life that had cried to him." - James Joyce

    My Photography and Watercolor Fine Art Prints!!! Cascade Colors Fine Art Prints
    https://docs.google.com/uc?export=do...Gd5N3NZZE52QjQ

  2. #2
    not to be trusted miss fortune's Avatar
    Join Date
    Oct 2007
    Enneagram
    827 sp/so
    Posts
    20,130

    Default



    My aunt learned 3 weeks before dying that she had kidney cancer and spent the last 3 weeks on dialysis, but I don't know if that would be of any help.

    I did learn that kidneys are one of the easier organs to replace, since there are even a lot of living donors out there, so it's not like needing a heart transplant. I've also known that people can live for years on dialysis and do perfectly fine

    Good luck!
    “Oh, we're always alright. You remember that. We happen to other people.” -Terry Pratchett

  3. #3
    & Badger, Ratty and Toad Mole's Avatar
    Join Date
    Mar 2008
    Posts
    18,536

    Default

    Quote Originally Posted by cascademn View Post
    Anyone have a family member who has gone through this ordeal?

    ----------------------------------

    My father is 62 and I just learned that within a year he will probably need to go on dialysis.

    (Sidenote: Men, **Get a physical at least every 1-2 yrs once you turn 45-50. My Dad went 5 yrs without going to the doctor, and then went in all of a sudden because he was frustrated with blurry vision, and it turns out his blood pressure had been off-the-charts (death level, they were shocked he wasn't dead) for quite a while and as a result his kidneys were destroyed.)

    He's been on quite a few meds, and a regimented diet, for about 4-5 years now, but it still came as a shock last week to me when I learned that after his last doctor's visit, he was informed about need for dialysis by next year, and need to go on the transplant list.

    I will be going to an all-day thing next week with my mother and father to learn about all of this, the options, etc etc, but right now I guess my brain is just adjusting to the fact that my dad might be dead within the next 5-10 years. It's really weird to be faced with that reality.

    I'm also getting the initial fears regarding transplants -- already getting an internal sense of obligation from myself, as well as my mothers' unspoken hints, that I 'should' be willing to donate a kidney. But it's not something I really want to do, to be honest, or think I should have to do -- it's just the beginnings of guilt thinking I 'should' do it if I love him. So, uh....

    Guess I don't know what to think at this point.

    -----------

    Anyone have any firsthand experience with all of this?
    Yeah, keep us informed with what you find.

    Victor.

  4. #4
    Senior Membrane spirilis's Avatar
    Join Date
    Jul 2007
    MBTI
    InTP
    Enneagram
    9w1 sp
    Socionics
    INTj Ni
    Posts
    2,652

    Default

    Ick!
    My uncle's gone through this and he's had to do it for about ~10 years. Health-wise he's deteriorated significantly over the past couple months and he's gone through the ringer quite a bit (just got out of a ~6wk hospital visit). He never had any transplants done though, so your dad may fare better if he does. Very sorry to hear about this though

    TBH if I were you I wouldn't donate my kidney. You're a young woman with many, many years ahead and you need your body parts. All of them.
    intp | type 9w1 sp/sx/so

  5. #5
    4x9 cascadeco's Avatar
    Join Date
    Oct 2007
    Enneagram
    4 so/sp
    Posts
    6,931

    Default

    Thanks everyone for your comments.

    It's not totally imminent that my dad will have to go onto dialysis, but also not out of the question that it could happen within the next 12 months. Possibly longer, but it really depends on when he starts experiencing symptoms enough that it becomes necessary to begin it. He's at about 15% kidney functionality now (ok, bad with details, it was somewhere between 12 and 16), and apparently it can be a threshold for when some people go onto dialysis. But again, depends on symptoms.

    Two types of dialysis - one that affects quality of life much more than the other type (the former is when you have to go into a clinic 3 times a week for 4 hrs/day). The latter is when you are able to do it within your own home.

    Currently a 5-6 yr waiting list for a deceased donor kidney (although I learned technically that's a brain-dead persons' kidney, and never a kidney from someone who just passed away, like in a car crash - makes total sense, logistically and functionally and all of that, but it was interesting to learn that - it was kind of a, "Huh" moment -- stuff they don't tell you when you sign up on your drivers' license to donate organs -- most of the organs can't be utilized).

    Of course live donor is what they prefer. Don't entirely understand that, as they didn't explain it or give documentation as far as success rates/life spans - just seemed to be a given. I suppose it's because it's done in the same hospital and there's no significant transit time.

    Also the longer one is on dialysis before getting the transplant, the less successful it may be.

    And of course all of the usual surgical risks, i.e. can't guarantee the transplant will be a success, etc.

    So that's the scoop.
    "...On and on and on and on he strode, far out over the sands, singing wildly to the sea, crying to greet the advent of the life that had cried to him." - James Joyce

    My Photography and Watercolor Fine Art Prints!!! Cascade Colors Fine Art Prints
    https://docs.google.com/uc?export=do...Gd5N3NZZE52QjQ

  6. #6
    Senior Member swordpath's Avatar
    Join Date
    Oct 2007
    MBTI
    ISTx
    Posts
    10,552

    Default

    My dad recently received a kidney transplant due to polycystic kidney disease.

    If I can assist you in answers to any questions, let me know. I can ask my dad stuff too, if need be.

  7. #7
    Emperor/Dictator kyuuei's Avatar
    Join Date
    Aug 2008
    MBTI
    enfp
    Enneagram
    8
    Posts
    13,878

    Default

    I think this would be the time to stress why it's SO important to get regular physicals and check-ups.!

    I mean, I don't see why anyone would brag or put off regular doctor visits without a damn good reason. (I can't think of one aside being in a financial crisis... but even then health > money.)

    Our good friend of the family's mother just got diagnosed with breast cancer. She's probably already known, and probably for a couple years now, without saying anything, I think because she thought she'd be a burden. She's on chemotherapy but.. the earlier detected, the earlier things can hopefully start healing or stabilizing.

    My mother has high blood pressure, and even if she didn't think it was a big deal then when they told her, it became one now when she caught a serious illness. Imagine if her blood pressure hadn't been controlled before that?
    Kantgirl: Just say "I'm feminine and I'll punch anyone who says otherwise!"
    Halla74: Think your way through the world. Feel your way through life.

    Cimarron: maybe Prpl will be your girl-bud
    prplchknz: i don't like it

    In Search Of... ... Kiwi Sketch Art ... Dream Journal ... Kyuuei's Cook book ... Kyu's Tiny House Blog ... Minimalist Challenge ... Kyu's Savings Challenge

  8. #8
    Member Fairy...'s Avatar
    Join Date
    Dec 2008
    MBTI
    INFJ
    Enneagram
    9
    Posts
    41

    Default

    He will have to follow a careful diet and if he can do this, it may be able to delay dialysis. A registered dietitian can help him out.
    While on dialysis, diet must be given a lot of attention with even further restrictions. High protein, high energy, restricted potassium, restricted sodium.
    All the best.

Similar Threads

  1. Success and Failure
    By Ginkgo in forum Philosophy and Spirituality
    Replies: 9
    Last Post: 07-22-2013, 06:09 PM
  2. What is failure and what is success?
    By Newbyagain in forum Academics and Careers
    Replies: 18
    Last Post: 04-18-2013, 01:41 PM
  3. [ENTP] ENTPs (and the others too), how do you deal with (unexpected) failures?
    By theadoor in forum The NT Rationale (ENTP, INTP, ENTJ, INTJ)
    Replies: 32
    Last Post: 02-06-2011, 12:01 AM
  4. Extravert and socializing failure...
    By Tamske in forum General Psychology
    Replies: 13
    Last Post: 12-22-2009, 09:18 AM
  5. Fanfare and Failure - An MBTIc glossary
    By Night in forum The Bonfire
    Replies: 54
    Last Post: 08-18-2008, 10:32 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
Single Sign On provided by vBSSO